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Chronic Illness
Chronic Illness

A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

  1. Be excellent to each other
  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
  4. No denialism or minimisation This applies challenges faced by chronically ill people.
  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the
Members
439
Posts
58
Active Today
56
Created
10 mo. ago
  • Chronic Illness @lemmy.world
    Björn Tantau @swg-empire.de

    Thursday Triumphs

    What went well for you? Today or this week. No matter how small, let's celebrate the good things in our lives!

    I'll try to post this regularly.

    I'm feeling a little bit better. Hope the trend continues.

  • Chronic Illness @lemmy.world
    Apytele @sh.itjust.works

    Recently made this: helpful for chronic mental health conditions (especially the WRAP planning mentioned at the end)

    cross-posted from: https://sh.itjust.works/post/35683029

    Short Version - it's a list of things to do instead of doing dumb shit making life altering-ly bad decisions.

    I typed this up real quick in reply to a question I saw elsewhere on Lemmy.

    Why?

    1. Your mental health just generally sucks lately
    2. You're waiting on an appointment with a psychiatrist, psychologist, therapist, or other treatment program that is days, weeks, or even months away and you need to make it there in one piece.
    3. If you get dragged to the ER for doing dumb shit making bad / harmful decisions, you want something to show the ER psychiatrist so they're less likely to admit you to the psych ward (I work in one. I try, and if you need it you need it, but they pretty much all suck).
    4. You wanna start a trend among your friend / social group of thinking about these things ahead of time instead of right before or during the dumb shit life altering-ly bad decisions.

    Also a cool u

  • Chronic Illness @lemmy.world
    Björn Tantau @swg-empire.de

    Thursday Triumphs

    What went well for you? Today or this week. No matter how small, let's celebrate the good things in our lives!

    I'll try to post this regularly.

    My illness is chronic but my tits are iconic.

  • Chronic Illness @lemmy.world
    Björn Tantau @swg-empire.de

    me_irl

    cross-posted from: https://lemm.ee/post/60012482

  • Chronic Illness @lemmy.world
    FarraigePlaisteach @lemmy.world

    The "spoons" metaphor. Is it helpful?

    I was telling someone recently about the "spoons" metaphor. I guessed they probably hadn't heard that before so before I said what I really wanted to say, I explained it. Basically, it means "unit of energy" and the idea is that we each have a different number of units each day depending on our ability / health.

    In the time that it took to explain that, I could have just said what I needed to. How did it become so popular? The spoon doesn't even symbolise anything itself. So while I think it made a good visual demo when the first person presented it, I think it lands differently with people in conversation.

    It is somehow reassuring to hear other people using it. It has shown me how many people struggle this way that I never realised before. But I think I'll stick with "batteries" or something that's easier to explain to people who aren't in the loop.

    Thoughts?

    Edit: The metaphor was invented by Christine Miserandino to illustrate her experience of lupus to someone in a café. I ass

  • Chronic Illness @lemmy.world
    Melatonin @lemmy.dbzer0.com

    Smelling burnt plastic hallucination is getting really, really old. I'm reading it's strictly a COVID thing, can anyone confirm? Everything tastes like it too.

  • Chronic Illness @lemmy.world
    misk @sopuli.xyz

    The recent publication of the 2024 results of the multinational Merck, which operates as Merck Sharp & Dohme (MSD) outside the United States, has revealed an unprecedented figure in the history of the pharmaceutical industry. Sales of the drug Keytruda, a monoclonal antibody indicated for several types of cancer, reached $29.5 billion after growing 18% last year. Never before has a drug reached such levels, shattering the record — once considered unattainable — of $19.95 billion set by Abbvie’s Humira in 2022. To put the figure into context, Keytruda has a turnover as high as the fashion giant Zara or the gross domestic product (GDP) of countries such as Senegal and Iceland.

    “It’s a drug that has forced us to rethink how we fund some treatments in the public health system. The system wasn’t prepared for a therapy that

  • Chronic Illness @lemmy.world
    anotherpurpleheathen @lemmy.blahaj.zone

    Chronic illness vent

    I have been dealing for years with stomach and gastric issues.

    It blows my mind that I went nearly a decade of my life without ever having any kind of stomach illness other than the kind of "knots in stomach" triggered by stress.

    Now, for the last half decade or so, it's just this constant cycle of getting beaten up behind the dumpster after school by my bully stomach.

    I just need this shit to stop. My sanity is waning.

  • Chronic Illness @lemmy.world
    MaryReads @lemmy.cafe

    Help with Diagnosis?

    So, I know that getting info from here isnt the same as an official diagnosis, but doctors have been absolutely useless. I am still looking for a diagnosis that fits but it don't really find anything. I would welcome any person with ideas where to look for more info.

    15 months ago, I had an infection, though I tested negative for Corona several times.

    Afterwards I got flu like symptoms and didn't get better until I crashed a few weeks later.

    After Several Months with strong Fatigue, Nausea, ME/CFS like Symptoms, where I barely could leave the house I was doing okay ish. Then Symptoms got worse again and I developed ChronicPain in in Muscles and Joints all over my body. It somehow seemed connected to eating but it took a long time to realize that it is connected to Histamin.

    So thats where I'm at: I thought it might be mcas, but my "only" symptom after eating anything with histamin is pain and fatigue. It doesn't really fit the "allergic reaction" I see described as typically for

  • Chronic Illness @lemmy.world
    Björn Tantau @swg-empire.de

    These are the people researching my condition

    cross-posted from: https://lemmy.dbzer0.com/post/40980009

    Aptly ruled

  • Chronic Illness @lemmy.world
    misk @sopuli.xyz

    Patients are taking part in a trial that scientists hope could ultimately lead to a cure for rheumatoid arthritis.

    The AuToDeCRA-2 study seeks to prove it is possible to train white blood cell commanders - dubbed the "generals" of the immune system - to order other "soldier" cells to stop attacking healthy tissues.

  • Chronic Illness @lemmy.world
    Drusas @fedia.io

    Imperial College project could lead to less invasive testing and combat increase in antibiotic resistance

    Jodie is a canine with special ­powers, scientists have discovered. The golden labrador can smell and ­identify ­particular bacteria and could soon play a key role in helping researchers develop a programme in which dogs could sniff out individuals infected with dangerous microbes.

    The project, recently launched by scientists at Imperial College London, could be vital in the battle against antibiotic resistance as well as the treatment of patients with lung ­disease and other conditions, they say.

    “We believe Jodie and her fellow medical detective dogs point to a new way to spot infected individuals, just by having a sniff of their socks or shirts,” said Professor Jane Davies at Imperial College.

    “They could become a major help in tackling antimicrobial resistance and conditions like cystic fibrosis.”

    Cystic fibrosis is one of the world’s most common inherited illnesses. A def

  • Chronic Illness @lemmy.world
    Björn Tantau @swg-empire.de

    Thursday Triumphs

    What went well for you? Today or this week. No matter how small, let's celebrate the good things in our lives!

    I'll try to post this regularly.

    I started a website to collect all my late grandmother's art. She made great paintings and collected other great art. I hope my relatives will help me in getting photos and descriptions. So far they all like the idea but nobody except for my sister in law sent in any photos. Hopefully that will change in the next few days.

    For anyone curious it's at https://brigitte-tantau.de/.

  • Chronic Illness @lemmy.world
    Droggelbecher @lemmy.world

    Is there any way to get ableists to just google 'hypotension'?

    Two part meme. Part one is a crying young person who looks like they're desperate to get someone to understand something. Caption: 'Me explaining why I can walk fast and run but can't stand or walk slowly well'. Part two is a super annoyed looking, slightly older person. Caption: 'people still assuming I'm lying out of laziness'.

  • Chronic Illness @lemmy.world
    Melatonin @lemmy.dbzer0.com

    "Helping"

  • Chronic Illness @lemmy.world
    Droggelbecher @lemmy.world

    When it rains

    Edit: I love this community so much, thank you all for trying to help!