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Disabled Community Megathread from June 30, 2025 to July 13, 2025

If you carry one thing with you today, let it be this: you are beautiful, you matter, and you are loved.

As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:

"Disability" is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.

Mask up, love one another, and stay alive for one more week.

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261 comments

  • I got the blood tests back today, and they say there's nothing particularly wrong, everything is more or less within the normal range. Slightly reduced kidney function and very low TSH but my TSH is meant to be kept low to prevent the cancer from coming back, so that's acceptable. The pins and needles are constant now though. I managed to get an appointment with the nurse, she said she'll ask the GP and see what he thinks but she thinks it's not a big deal. OK so over the past 2 weeks my hair has begun falling out to the point I have bald patches and I now have permanent pins and needles but according to medics, everything's OK, nothing to worry about and they have no idea what the problem is. Very helpful, as ever.

    • That's utterly disappointing. I'm so sorry they're not taking you seriously and that it's such an uphill battle. I mean, it's obvious your body is telling you something is going on. You deserve better. Maybe that upcoming GP appointment will provide some answers or get you closer to a treatment option. Hope you're hanging in there okay, love, and that you're able to get some rest despite everything.

      • Thanks, but it's actually really starting to freak me out now. It just won't go away and this is even scarier than having cancer. I'm worried I could lose the use of my legs or something. And if it still hasn't resolved by Monday, I think I will have to cancel my upcoming foot surgery. it just doesn't feel safe at all getting this area injected with a load of local anaesthetic when I am having these problems.

    • Yeah, sure, hair loss like that is totally normal, no biggie. What a joke. I'm sorry you have to go through this again.

      In all seriousness, maybe it isn't something in your blood? Or maybe whatever is missing wasn't covered by thr tests done?

      If I manage to find out where my hair loss is coming from, I'll let you know.

      • Thanks. Yeah the doctors just don't seem concerned about bald patches suddenly appearing at all. That's why I had to google "hair loss blood tests" and trick them into doing them. So it's possible there might be other tests that I don't know about that could be done. But I have an appointment with the endo in August, maybe she might say something about it, although I doubt it. This is exactly how they kept fobbing me off, for over three years, previously and in the end it turned out to be thyroid cancer. It's just so hard to get taken seriously, no-one cares, although right now I'm much more worried about the pins and needles.

        • I sympathize, love. And I'm sorry you're being ignored again. Wish I could do anything to help you out

          • Thanks. Having someone to talk to is a huge help. I don't have anyone to talk to in real life. If I ever mention a complaint about my situation to my landlady she acts like I'm living the high life, saying I get free money and don't have to do anything. Ignore the fact that I don't get any "free money" until my appeal, and the fact that my entire life had to be ruined to get this "free money."

261 comments